Click a name to visit. Thursday, January 17, 2013. May we just thank Johan, Jenny and Philip Ost for allowing Billy to come and stay with us. I Want to post more.

Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.

What is Alport Syndrome? Hear From the Experts. 5K for Healthy Kidneys a Great Success! The 5K for Healthy Kidneys. Thank you to all the ASF campaigners and donors. Have you seen the latest ASF newsletter? Be sure to register.

What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Is a patient-led organisation dedicated to empowering people living with Alport. To enjoy the best possible quality of life. Drawing on our continuous learning from and collaboration with individuals, families and the scientific community, this website aims to facilitate a support and information network for all those affected by Alport.